The short answer
Choose how you want to understand this
The full explanation.
Almost nobody wants to do this paperwork. Almost every family that skipped it wishes they hadn't. The work described here takes a few afternoons. Done in advance, it removes a lot of guessing and expense from the worst week of a family's life. Done at the last minute, it usually gets done badly.
Advance directives and wills do completely different jobs
This is the single most common confusion, and it matters.
An advance directive is about medical care while you are alive but cannot speak for yourself. It usually has two parts. A living will records what treatments you would and would not want under set conditions. A durable power of attorney for health care names the person who decides on your behalf. That person is sometimes called a health care proxy or agent. The National Institute on Aging notes that advance directives take effect only when you cannot communicate your own wishes. If you have none, state law determines who decides for you.
A will does nothing at all until after you have died. It directs property and names an executor. For parents of young children, it also names a guardian. That last part matters most.
There are also medical orders such as a DNR or a POLST/MOLST form. A clinician signs these. They can be acted on right away in an emergency, which an advance directive on its own cannot be. They are generally used when someone is seriously ill or near the end of life. Rules vary a lot by state. If you spend a lot of time in more than one state, get documents that are valid in each.
Naming a health care agent tends to be more useful than trying to anticipate every scenario in writing. What that person really needs is not a document. It is a conversation about what a good outcome would look like to you. If care has shifted toward comfort, the team described in palliative care will usually help you work through this. Hospice care programs generally require these conversations anyway.
Funeral costs and how to keep them down
Funeral pricing is one of the few areas where federal consumer protection is specific and genuinely useful. The Federal Trade Commission's Funeral Rule gives you rights. According to the FTC's own consumer guidance, you have the right to:
- Get price information over the phone. You do not have to give your name or any other details first.
- Receive a written, itemized general price list when you visit a funeral home. You can take it away and compare.
- See casket prices and outer burial container prices before anyone shows you the merchandise.
- Buy only the goods and services you want. You do not have to take a package with items you don't want.
- Use a casket or urn bought elsewhere. The funeral home may not charge a handling fee for that.
- Get an itemized statement of everything you selected and its cost, right after you make arrangements.
The FTC also states that no state requires routine embalming. Alternatives such as refrigeration, direct cremation or immediate burial exist.
The practical advice that follows is simple. Get price lists from three funeral homes in your area before you need them. Do it while nobody is grieving. Prices for identical services in the same city vary far more than most people expect. A bereaved family comparing options on the day is in no position to negotiate. Also check whether a burial benefit exists through the person's employer, union, veterans' status or a life insurance policy. Do that before paying out of pocket.
Digital accounts are the part everyone forgets
Passwords in someone's head die with them. Customer service will not simply hand over an account. Several platforms now let you decide in advance. Google's Inactive Account Manager lets you set how long an inactivity period counts, name up to ten trusted contacts, and choose what data each one receives. Apple lets you name one or more Legacy Contacts. They will need an access key you generate, plus a death certificate, to get access. Facebook lets you designate a legacy contact to manage a memorialized profile.
Set these up now, in each account's own settings. Also write down which accounts hold things the family will actually need or want. Keep that list on paper, stored with the will. Include photos, the email address used for two-factor codes, and subscriptions that will keep billing. Include any domain names or business accounts. Include any cryptocurrency, which is genuinely unrecoverable without keys. Do not put passwords in the will itself. A will can become a public document.
The document list a family actually needs
Use one labeled folder, in a place someone else knows about. Put in the will and the executor's contact details. Add the advance directive and health care proxy, and the financial power of attorney. Add the birth certificate, Social Security number, and marriage or divorce records. Add military discharge papers (DD-214), deeds and vehicle titles, and life insurance policies. Add a list of bank, retirement and investment accounts. Add recent tax returns, and a list of debts and recurring bills. Add funeral wishes and any prepaid arrangements. Add a list of people to notify. A safe deposit box is a poor choice if nobody else has legal access to open it.
None of this makes a death easier to bear. It only means the people you love are not calling utility companies and arguing with a bank in the same week they are burying you. That is a real gift, and it is one of the few you can still arrange yourself.
Sources

Common questions
What is the difference between an advance directive and a will?
An advance directive is about medical care while you are alive but cannot speak for yourself. It usually has two parts: a living will recording what treatments you would and would not want, and a durable power of attorney for health care naming the person who decides on your behalf. A will does nothing until after you have died. It directs property, names an executor, and for parents of young children it names a guardian.
How is a DNR or POLST different from an advance directive?
They are medical orders signed by a clinician, so they can be acted on right away in an emergency, which an advance directive on its own cannot be. They are generally used when someone is seriously ill or near the end of life. Rules vary a lot by state, so if you spend a lot of time in more than one state, get documents that are valid in each.
What rights do I have when arranging a funeral?
Under the FTC's Funeral Rule you can get price information over the phone without giving your name, receive a written itemized general price list to take away and compare, see casket and outer burial container prices before anyone shows you the merchandise, and buy only the goods and services you want rather than a package. You may use a casket or urn bought elsewhere with no handling fee, and you must get an itemized statement right after you make arrangements.
Is embalming required?
No. The FTC states that no state requires routine embalming, and alternatives such as refrigeration, direct cremation or immediate burial exist. Getting price lists from three funeral homes before you need them is worthwhile, because prices for identical services in the same city vary far more than most people expect.
What happens to online accounts when someone dies?
Passwords in someone's head die with them, and customer service will not simply hand over an account. Google's Inactive Account Manager lets you set an inactivity period, name up to ten trusted contacts and choose what each receives; Apple lets you name Legacy Contacts who need an access key plus a death certificate; Facebook lets you designate a legacy contact for a memorialized profile. Keep a paper list of important accounts with the will, but never put passwords in the will itself, because a will can become a public document.
Questions to ask your doctor
Being prepared helps you get the most out of your appointments. Save or print these questions.
Tap a question to save it to your list (kept on this device).
Your next step
A practical way to use what you just read.
Speak With Trained Specialists & Human Navigators
Cancer Explained provides educational guidance, but does not replace trained specialists, social workers, or your medical team.
Talk to a trained cancer information specialist
Free, confidential assistance from NCI Cancer Information Service via phone, chat, or email.
Contact your oncology team
Locate after-hours contact numbers, portal messages, or urgent triage phone lines.
Find a patient navigator
Get one-on-one help with appointments, logistics, translation, and care coordination.
Find a genetic counselor
Discuss inherited mutation risk, family history, and genetic testing options.
Find an oncology social worker
Access emotional counseling, family support groups, and mental health resources.
Find a financial navigator
Locate copay assistance foundations, grant programs, and lodging/travel support.
Find a clinical-trial specialist
Search matching studies and speak with NCI trial information specialists.
Get urgent help
Immediate emergency guidance for fever (>100.4°F during chemo), severe pain, or shortness of breath.
Help Us Improve This Guide
Did this explanation answer your question and help you determine your next step?
Know someone who needs this?
Plenty of people are looking for something like this and do not know where to start. If this would help a friend or someone you love, send it on — we have written an opening line so you do not have to stare at an empty message. You can change every word of it.
Your message is written and sent in your own email or messaging app — we never see who you send it to, and nothing is added to any list.
Knowledge Check
0 of 2 answered
This self-assessment checks understanding of educational content only. It is not medical advice.
Where to get help with this, by name
A hospital social worker or financial navigator is the best first call if you have one. If you do not, these organisations help at no cost to you.
- Patient Advocate Foundation — (800) 532-5274. Case managers take on insurance appeals, denials and medical debt with you. Free.
- TotalAssist (Patient Advocate Foundation's copay programme, merged with the PAN Foundation in 2026) — 866-512-3861. Help with medication copays, coinsurance and deductibles, insurance premiums, and office-visit and administration charges on the day of treatment, across nearly 150 conditions.
- CancerCare — 800-813-HOPE (4673). Oncology social workers, free counselling and support groups. Limited financial help with transport, home care, child care and lodging for people in active treatment who meet their income guidelines — funding is first-come, first-served, so call to ask what is open.
- Triage Cancer — 424-258-4628. Free legal and financial navigation: insurance, employment rights, disability.
- Blood Cancer United (formerly the Leukemia & Lymphoma Society) — (800) 955-4572. Information Specialists answer questions on treatment, insurance and financial problems.
- HealthCare.gov — 1-800-318-2596. For questions about the external review process — the independent review your insurer is required by law to accept.
Your state Department of Insurance regulates insurers and takes consumer complaints. On Medicare, your State Health Insurance Assistance Program (SHIP) gives free one-to-one counselling. If a specific drug is the problem, ask the manufacturer about its patient assistance programme.
Phone numbers checked 31 July 2026. Programmes and eligibility change — if a number has moved, please tell us.
Plain-language explanation of the published sources cited on this page. AI-assisted, source-checked, not clinician-reviewed.
Sources last checked: 2026-08-11 what this meansLast updated: 2026-08-11Next planned review: 2027-07-26
How this page was created
Cancer Explained does not originate medical claims. Every page restates guidance already published by the National Cancer Institute, the CDC, the USPSTF and the FDA, in plain language, with the source cited so you can check the original yourself. AI does the translating and organizing; automated checks test claims, citations, clarity and safety before anything publishes. We do not employ clinicians and do not intend to — our work is translation and navigation, not clinical judgment. Nothing here is personal medical advice, and no page can account for your particular situation.
General education. Low-risk educational or organizational content. Medical facts are cited to authoritative sources.
Human medical review: not completed. Pages here are not signed off by a clinician before they publish. That is not an oversight we are quietly working around: we restate published guidance and cite it, so the authority belongs to the source rather than to us, and every page names where its claims come from — you can verify us instead of trusting us. Where a volunteer clinician has reviewed a page, their name and credentials appear on it; where no name appears, no clinician has checked it. We are glad to have reviewers and are recruiting them, and we do not hold pages back waiting for one. Use this site to understand your situation and to ask better questions of the people treating you.
How this page was created
Cancer Explained does not originate medical claims. Every page restates guidance already published by the National Cancer Institute, the CDC, the USPSTF and the FDA, in plain language, with the source cited so you can check the original yourself. AI does the translating and organizing; automated checks test claims, citations, clarity and safety before anything publishes. We do not employ clinicians and do not intend to — our work is translation and navigation, not clinical judgment. Nothing here is personal medical advice, and no page can account for your particular situation.
Human medical review: not completed. Pages here are not signed off by a clinician before they publish. That is not an oversight we are quietly working around: we restate published guidance and cite it, so the authority belongs to the source rather than to us, and every page names where its claims come from — you can verify us instead of trusting us. Where a volunteer clinician has reviewed a page, their name and credentials appear on it; where no name appears, no clinician has checked it. We are glad to have reviewers and are recruiting them, and we do not hold pages back waiting for one. Use this site to understand your situation and to ask better questions of the people treating you.
Read more about our editorial process, our use of AI, and our corrections policy.
Spotted a problem? Report an error — a factual mistake, broken or outdated source, confusing wording, or anything that seems unsafe. Please do not include names, medical record numbers, dates of birth, addresses, or other identifying medical information in your report.
After using this page, do you understand what to do next?
Anonymous — we only record the answer, never who gave it.
Still have questions?
Educational answers, plain language
Free to print and share
